Bye, Bye Elephant Nose

Bye, Bye C-Pap.  Hello, Nasal Cannula!

Ashton is three weeks old today and she celebrated by saying goodbye to her C-Pap for now.  She is now on a nasal cannula which delivers oxygen to her.  This is a big deal because now her little lungs are 100% responsible for delivering oxygen to her body.  She no longer has any pressure support forcing her lungs open.  She tolerated the change today, but she is struggling a little bit when she is on her back or sides.  She struggles to keep her heart rate and respiration rate up, but fights through most of the episodes on her own.  I worry about her wearing herself out, but I trust in the knowledge of the doctors.  If necessary, she will go back onto the C-Pap, but we are praying she continues to beat the odds!

It is still too hard for me to talk about in detail, but I'm praising God for the miracle journey Ashton is on right now.  This little girl has taught me more about faith in 21 days than anyone/anything has in my 32 years on earth.  We do not know what the future holds for our daughter and, despite how wonderful she looks, we know we are not "out of the woods" yet.  We also know that she is here fighting this battle despite her "100% fatal" condition.  Ashton has a purpose her on this earth and it is my job as her momma to give her every opportunity to show her purpose to others.

Please continue to pray for Ashton's ability to breath on her own with the nasal cannula and that her little body stays free of infection. 

Much love!

Brandi